top of page
JIR CliPS Insights Page
Welcome to the JIR CliPS Insights Page!
This private section is dedicated to our questionnaire participants. Here, you can access graphical abstracts or presentations of upcoming releases related to the CliPS project, providing you with early insights and exclusive previews of our latest findings and strategies. Thank you for your valuable contributions and ongoing support.
Posters, Presentations and abstracts
Cross-National Biologic Treatment Guidelines for Familial Mediterranean Fever: A Comparative Analysis - Muserref sap Cuceoglu, Tanja Hinze, Daiva Gorczyca and the JIR CliPS network
PReS Congress 2024
Analysis of worldwide data of diagnostic approaches for Kawasaki Disease trough the JIR CliPS network - Jurgita Marčiulynaitė, Aušra Šnipaitienė, Tilmann Kallinich, Daiva Gorczyca and JIR‐CliPS network
PReS Congress 2024
This study highlights global variations in the diagnostic criteria for Kawasaki disease, revealing that, compared to others, European physicians may diagnose complete KD earlier than day 5 of fever and that coronary artery lesions play a key role in diagnosing incomplete KD. These findings provide real-life data and emphasize that current guidelines still allow room for interpretation in diagnosing KD.
This study highlights global variations in the diagnostic criteria for Kawasaki disease, revealing that, compared to others, European physicians may diagnose complete KD earlier than day 5 of fever and that coronary artery lesions play a key role in diagnosing incomplete KD. These findings provide real-life data and emphasize that current guidelines still allow room for interpretation in diagnosing KD.
Diverse management approaches for atypical skin manifestations in IgAV –Preliminary results from the JIR CliPS network - Nastasia Kifer, Daiva Gorczyca and JIR-CLiPS network
PreS congress 2024
Analysis of worldwide data of initial therapy for Kawasaki Disease through the Juvenile inflammatory rheumatism (JIR)-CliPS network - Margarita Ganeva, Zeynep Balik, Daiva Gorczyca and the JIR CliPS network
PreS congress 2024
The use of Steroids in PFAPA syndrome and SURF: preliminary results from the JIR -CLiPS survey - Ezgi D.
BatuBatu, Seher Sener, Michael Hofer and the JIR CliPS network
PReS Congress 2024
Prise en charge thérapeutique en vie réelle de la maladie de Still en France en 2024 - Philippe Mertz, WG5 - France
(Poster in French)
- Our findings highlight serious discrepancies between real-life management of Still's disease and national guidelines.
- The place of bDMARDs and steroid management needs to be particularly adressed.
- We highlight a need for updated unified French recommendations for both pediatric and adult forms.
- Our findings highlight serious discrepancies between real-life management of Still's disease and national guidelines.
- The place of bDMARDs and steroid management needs to be particularly adressed.
- We highlight a need for updated unified French recommendations for both pediatric and adult forms.
JIR CliPS Data analyse - Challenges and insights - Laura Crosby, WG1 - UK
Online JIR CliPS WG meeting 2024
In Spring 2024, Laura Crosby (UK), joined the JIR CliPS STSM program in Lausanne within the WG Lupus. In this video, Laura presents her data anaylse, challenges and insights to the WG members.
In Spring 2024, Laura Crosby (UK), joined the JIR CliPS STSM program in Lausanne within the WG Lupus. In this video, Laura presents her data anaylse, challenges and insights to the WG members.
Worldwide evaluation of clinical practice strategies (CliPS) for lung involvment in Still Disease - Maurine Jouret, WG5 - France
EULAR Congress 2024
This work document and analyze global clinical practices for managing lung disease associated with Still’s Disease (including systemic juvenile idiopathic arthritis and adult-onset Still's disease). It aims to compare these practices with existing recommendations by collecting data through the Clinical Practice Strategies (CliPS) network. The study seeks to identify diagnostic clinical signs and treatment approaches, highlight variations in medical practices, and underscore the need for standardized clinical strategies tailored to different regions to improve patient management.
This work document and analyze global clinical practices for managing lung disease associated with Still’s Disease (including systemic juvenile idiopathic arthritis and adult-onset Still's disease). It aims to compare these practices with existing recommendations by collecting data through the Clinical Practice Strategies (CliPS) network. The study seeks to identify diagnostic clinical signs and treatment approaches, highlight variations in medical practices, and underscore the need for standardized clinical strategies tailored to different regions to improve patient management.
Publications from JIR CliPS
Corticosteroid use in PFAPA syndrome: clinical practice data from the JIR-CliPS Survey Study and a comprehensive literature review - Rheumatology
Batu ED, Sener S, Rodrigues M, Vinit C, Hofer F, Laskari K, Costa RC, Faria MS, Baykal GO, Boyarchuk O, Gilliaux O, Pateras K, Sonmez HE, Toplak N, Gattorno M, Hofer M. Rheumatology (Oxford). 2025 Feb 10:keaf036. doi: 10.1093/rheumatology/keaf036.
bottom of page