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PFAPA and SURF Syndrome

PFAPA : Periodic fever with aphthous stomatitis, pharyngitis and adenitis (PFAPA) is the most common periodic fever syndrome of childhood. In contrast to the monogenic periodic fever syndromes, the genetic defect(s) in PFAPA have not yet been identified.

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SURF : In the last few years, a subgroup of patients has been identified presenting with the typical features of recurrent inflammatory fevers, but they present no pathological variants in the genes associated with hereditary recurrent fevers (such as MEFV, MVK, TNRSF1A, NLRP3) and do not fulfil any of the current PFAPA clinical criteria.

SEE ALL JIR CliPS EVENTS HERE

Who we are

We are a group of worldwide  rheumatologists pediatricians specialized in

PFAPA and SURF diseases.

Michael Hofer, CH

CliPS Chair and WG Leader

Mariana Rodrigues, PT

CliPS & WG Science communication officer

Natasa Toplak, SI

Vice WG Leader

Caroline Vinit, FR

WG Repository officer

Ezgi Deniz Batu, TR

WG Grant awarding officer

Marco Gattorno, IT

WG Registry officer

How to participate ?

You are interested in CliPS ?

You can get involved at 2 different levels :

Answer our questionnaires

Share your experience through the CliPS questionnaire.

We have 5 questionnaires, each of them treats a different medical condition :

  • Lupus Nephritis

  • Kawasaki and IgA Vasculitis

  • sJIA

  • PFAPA/SURF

  • Biologics in monogenic auto inflammatory disease

Join our Working Groups

The CliPS project receives COST European funding for all networking and dissemination activities for the next 4 years.

 

Join one of our Working Groups (for 1 of the 5 medical conditions) and get involved in:

  • The data analysis process,

  • The creation of the repository and

  • In the dissemination of the project

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COST (European Cooperation in Science and Technology) is a funding agency for research and innovation networks. Our Actions help connect research initiatives across Europe and enable scientists to grow their ideas by sharing them with their peers. This boosts their research, career and innovation.

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https://www.cost.eu/actions/CA21168/

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