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Lupus Nephritis

Systemic lupus erythematosus (SLE) is a chronic and complex autoimmune disease which causes systemic inflammation and may involve any organ system. Childhood-onset SLE (cSLE) is rare, with an incidence of 0.36-0.9 per 100,000 children and a prevalence of 1.9-25.7 per 100,000 children-years worldwide.

Thérapie pour enfants

Events and updates

Publications

How to participate?

Who we are

We are a group of worldwide  rheumatologists pediatricians specialized in

Lupus Nephritis disease.

We focus on Induction Therapy and aim to create a repository.

Sylvia Kamphuis.jfif

Sylvia Kamphuis

Netherlands

WG Leader

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Dieneke Schonenberg-Meinema

Netherlands

Vice Group Leader

Sylvia Kamphuis.jfif

Eve Smith

UK

Grant awarding officer

Sylvia Kamphuis.jfif

Lovro Lamot

Art Director

Sylvia Kamphuis.jfif

Sylvia Kamphuis

Netherlands

WG leader

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Dieneke Schonenberg

Netherlands

WG Vice leader

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Eve Smith

UK

WG Grant awarding officer

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Lovro Lamot

Croatia

WG Communication officer

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Raffaela Carlomagno

Switzerland

WG Repository officer

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Alexandre Belot

France

WG registry officer

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Angela Migowa

Kenya

WG Member

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Belde Kasap Demir

Turkey

WG member

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Amani Mubarak

Netherlands

WG member

Chris Pruunsild.jfif

Chris Pruunsild

Estonia

WG member

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Cristina Lanna

Brazil

WG member

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Ida DzifaDey

Ghana

WG member

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Jade Cognard

France

WG member

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Joan Calzada-Hernández

Spain

WG member

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Jovana Paunovic Pantic

Serbia

WG member

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Konstantinos Pateras

Greece

WG member

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Marleen Verkaaik

Netherlands

WG member

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Murat Yılmaz

Turkey

WG member

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Natasha Jordan

Ireland

WG member

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Sara Ganhão

Portugal

WG member

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Sezgin Sahin

Turkey

WG member & Managing Comitee Registry officer 

How to participate ?

You are interested in CliPS ?

You can get involved at 2 different levels :

Answer our questionnaires

Share your experience through the CliPS questionnaire.

We have 5 questionnaires, each of them treats a different medical condition :

•Lupus Nephritis

•Kawasaki and Iga Vasculitis

•sJIA

•PFAPA/SURF

•Biologics in monogenic auto inflammatory disease

Join our Working Groups

The CliPS project receives COST European funding for all networking and dissemination activities for the next 4 years.

 

Join one of our Working Groups (for 1 of the 5 medical conditions) and get involved in:

•The data analysis process,

•The creation of the repository and

•In the dissemination of the project

To apply

1) Create your COST profile : https://e-services.cost.eu/user/registration/email

connect to our Action's page on the COST website

2) Apply to become a WG member (https://www.cost.eu/actions/CA21168/) in the working group section

COST (European Cooperation in Science and Technology) is a funding agency for research and innovation networks. Our Actions help connect research initiatives across Europe and enable scientists to grow their ideas by sharing them with their peers. This boosts their research, career and innovation.

https://www.cost.eu/actions/CA21168/

COST 2 logos.JPG

COST (European Cooperation in Science and Technology) is a funding agency for research and innovation networks. Our Actions help connect research initiatives across Europe and enable scientists to grow their ideas by sharing them with their peers. This boosts their research, career and innovation.

https://www.cost.eu/

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