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A project of the Fondation RES
Lupus nephritis management in children
Systemic lupus erythematosus (SLE) is a chronic and complex autoimmune disease which causes systemic inflammation and may involve any organ system. Childhood-onset SLE (cSLE) is rare, with an incidence of 0.36-0.9 per 100,000 children and a prevalence of 1.9-25.7 per 100,000 children-years worldwide.
Who we are
We are a group of worldwide rheumatologists pediatricians specialized in
Lupus Nephritis disease.
We focus on Induction Therapy and aim to create a repository.
Sylvia Kamphuis, NL
WG Leader
Lovro Lamot, HR
WG Science communication officer
Raffaela Carlomagno, CH
Vice WG Leader
Raffaela Carlomagno, CH
WG Repository officer
Eve Smith, UK
WG Grant awarding officer
Alexandre Belot
WG Registry officer
How to participate ?
You are interested in CliPS ?
You can get involved at 2 different levels :
Answer our questionnaires
Share your experience through the CliPS questionnaire.
We have 5 questionnaires, each of them treats a different medical condition :
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Lupus Nephritis
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Kawasaki and IgA Vasculitis
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sJIA
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PFAPA/SURF
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Biologics in monogenic auto inflammatory disease
Join our Working Groups
The CliPS project receives COST European funding for all networking and dissemination activities for the next 4 years.
Join one of our Working Groups (for 1 of the 5 medical conditions) and get involved in:
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The data analysis process,
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The creation of the repository and
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In the dissemination of the project
COST (European Cooperation in Science and Technology) is a funding agency for research and innovation networks. Our Actions help connect research initiatives across Europe and enable scientists to grow their ideas by sharing them with their peers. This boosts their research, career and innovation.
https://www.cost.eu/actions/CA21168/
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