A project of the Fondation RES
Lupus Nephritis
Systemic lupus erythematosus (SLE) is a chronic and complex autoimmune disease which causes systemic inflammation and may involve any organ system. Childhood-onset SLE (cSLE) is rare, with an incidence of 0.36-0.9 per 100,000 children and a prevalence of 1.9-25.7 per 100,000 children-years worldwide.
Who we are
We are a group of worldwide rheumatologists pediatricians specialized in
Lupus Nephritis disease.
We focus on Induction Therapy and aim to create a repository.
Sylvia Kamphuis
Netherlands
WG Leader
Dieneke Schonenberg-Meinema
Netherlands
Vice Group Leader
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Eve Smith
UK
Grant awarding officer
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Lovro Lamot
Art Director
Sylvia Kamphuis
Netherlands
WG leader
Dieneke Schonenberg
Netherlands
WG Vice leader
Eve Smith
UK
WG Grant awarding officer
Lovro Lamot
Croatia
WG Communication officer
Raffaela Carlomagno
Switzerland
WG Repository officer
Alexandre Belot
France
WG registry officer
Angela Migowa
Kenya
WG Member
Belde Kasap Demir
Turkey
WG member
Amani Mubarak
Netherlands
WG member
Chris Pruunsild
Estonia
WG member
Cristina Lanna
Brazil
WG member
Ida DzifaDey
Ghana
WG member
Jade Cognard
France
WG member
Joan Calzada-Hernández
Spain
WG member
Jovana Paunovic Pantic
Serbia
WG member
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Konstantinos Pateras
Greece
WG member
Marleen Verkaaik
Netherlands
WG member
Murat Yılmaz
Turkey
WG member
Natasha Jordan
Ireland
WG member
Sara Ganhão
Portugal
WG member
Sezgin Sahin
Turkey
WG member & Managing Comitee Registry officer
How to participate ?
You are interested in CliPS ?
You can get involved at 2 different levels :
Answer our questionnaires
Share your experience through the CliPS questionnaire.
We have 5 questionnaires, each of them treats a different medical condition :
•Lupus Nephritis
•Kawasaki and Iga Vasculitis
•sJIA
•PFAPA/SURF
•Biologics in monogenic auto inflammatory disease
Join our Working Groups
The CliPS project receives COST European funding for all networking and dissemination activities for the next 4 years.
Join one of our Working Groups (for 1 of the 5 medical conditions) and get involved in:
•The data analysis process,
•The creation of the repository and
•In the dissemination of the project
To apply
1) Create your COST profile : https://e-services.cost.eu/user/registration/email
connect to our Action's page on the COST website
2) Apply to become a WG member (https://www.cost.eu/actions/CA21168/) in the working group section
COST (European Cooperation in Science and Technology) is a funding agency for research and innovation networks. Our Actions help connect research initiatives across Europe and enable scientists to grow their ideas by sharing them with their peers. This boosts their research, career and innovation.
https://www.cost.eu/actions/CA21168/
