A project of the Fondation RES
JIR-CliPS
Real Life Clinical Practice Strategies
The JIR-CliPS project aims to collect real life clinical practice strategies from worldwide physicians taking care of the following 5 medical conditions:
Lupus Nephritis
Kawasaki disease and IgA vasculitis
Monogenic autoinflammatory diseases
PFAPA and SURF
SJIA / Still's disease
The final goal is to develop a repository of clinical practice strategies from which the treating physician, anywhere in the world, can choose the most applicable strategy for their local clinical practice.
JIR-CliPS description
Project team
Circle 1
Strategy and Finance
Daiva Gorczyca
Helmut Wittkowski
Katerina Theodoropoulou
Michaël Hofer
Sophie Georgin-Lavialle
Sylvia Kamphuis
Tilmann Kallinich
Véronique Hentgen
Circle 2
Scientific aspects
Lupus Nephritis
Alexandre Belot
Amani Mubarak
Angela Migowa
Audrey Laurent
Eve Smith
Marleen Verkaaik
Raffaella Carlomagno
Sylvia Kamphuis
Kawasaki and IgA vasculitis
Arune Ramanauskiene
Ausra Snipaitiene
Daiva Gorczyca
Rolando Cimaz †
Teresa Giani
Tilmann Kallinich
Monogenic Autoinflammatory Disease
Helmut Wittkowski
Inès Elhani
Roberta Caorsi
Tanja Hinze
Véronique Hentgen
PFAPA and SURF
Caroline Vinit
Manel Mejbri
Marco Gattorno
Michaël Hofer
SJIA / Still's disease
Dirk Föll
Katerina Theodoropoulou
Maurine Jouret
Soad Hashad
Sophie Georgin-Lavialle
Yulia Vyzhga
Natasa Toplak
Circle 3
Regional Coordination
To participate to the project please contact your regional coordinator. If there is no coordinator for your country, contact here.
Brazil: Cristina Lanna
Ghana: Dzifa Dey
New-Zealand: Jacqueline Yan
Switzerland: Michaël Hofer
On going recruitment for other countries
CliPS participants
We look for worldwide participation so please contact us if you wish to participate to this project
Last update on 5th Sept 2022
Austria
Juergen Brunner
Brazil
Silva Clóvis A - Simone Appenzeller - Blanca Bica -Lucas Borges -Leonardo Campos - Miria Paula Cavalcante - Cristina Costa Duarte Lanna - Fernandes Degree - Filipe Didier - Maciel Adriana - Fonseca Alessandra - Fonseca Melissa - Fraga Ana Luiza - Garcia Cunha Gustavo - Henrique Gomes - Ekaterini Goudouris - Natalia Iannini - Katia Tomie Kozu - Sean Lanças - Teresa Cristina Martins - Vicente Robazzi - Zanata Brufatto - Matheus Leonardo Mendonca - Ana Moraes - Carlos Nobre Rabelo Junior - Francisco Afranio - Pereira Neto - Fernanda Pinto-Mariz - Claudia Saad Magalhaes - Maria Carolina Santos - Flavia Santos - Ana Cristina Simões e Silva - Flavio Sztajnbok - Anna Tavares - Barreto Tavares - MariaTerreri
Bulgaria
Margarita Ganeva
Croatia
Marija Jelusic - Mario Sestan
Estonia
Jaanika Ilisson - Chris Pruunsild
France
Sophie Georgin-Lavialle - Audrey Laurent - Caroline Vinit
Germany
Tanja Hinze - Helmut Wittkowski
Ghana
Emmanuella Amoako - Richard Doe - Abdul JalilInusah - Nana-Akyaa Yao
Israel
Yosef Uziel
Italy
Rolando Cimaz - Teresa Giani
Kenya
Angela Migowa
Libyan Arab Jamahiriya
Soad Hashad
Lithuania
Arūnė Ramanauskienė - Ausra Snipaitiene
Morocco
Kenza Bouayed
Portugal
Francisca Aguiar - Sara Ganhão - Mariana Rodrigues
Romania
Ciprian Jurcut
Slovenia
Natasa Toplak
Spain
Juan Manuel Mosquera - Judith Sánchez-Manubens
Switzerland
Florence A.Aeschlimann - Sabrina Bressieux-Degueldre - Elvira Cannizzaro Schneider - Michaël Hofer - Ricarda Hoop - MicheleI UDICI - Sebastiano A.G.Lava - Palmer Med - Manel Mejbri - Federica Vanoni
Tunisia
Zohra Fitouri - Rahma Guedri
Turkey
Seza Özen - Sezgin Sahin
United Kingdom
Eve Smith - Kishore Warrier